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Thursday, April 10, 2008, from 2:00 - 3:00 p.m., EST
Clinical Trials in Your Community: NCI's Community Clinical Oncology Program (CCOPs)
Dr. Lori Minasian, Chief, Community Oncology and Preventive Trials Research Group, Division of Cancer Prevention, NCI; Dr. John Kugler, Principal Investigator, Illinois Oncology Research Association CCOP, Illinois CancerCare; and Ms. Laura Matus, Volunteer Coordinator, Illinois CancerCare spoke about clinical trials in the community setting. A question and answer session for participants followed.
Replay of the call is available through May 10, 2008 by dialing toll-free 1-800-284-7027.
Thursday, March 20, 2008, from 3:00 to 4:00 p.m., EST
Global Burden of Cancer: Partnerships and Progress
The featured speakers were: Dr. Joe Harford, Director of NCI's Office of International Affairs (OIA) and advocate Debra Kirkland who spoke about her global collaborations funded by the Komen for the Cure. A question and answer session for participants followed. To learn more about OIA, visit http://oia.cancer.gov/.
Thursday, February 28, from 3:30 p.m. - 4:30 p.m., EST
Webinar: Tools to Guide Efforts to Reduce Colorectal Cancer Deaths
Replay available at https://www.mymeetings.com/nc/join.php?i=PG9204724&p=NCI&t=r through March 29, 2008.
The National Cancer Institute’s (NCI) Office of Advocacy Relations hosted a webinar on a set of decision support tools developed through NCI funding that can be used to guide evidence-based policies/guidelines and cancer control planning to decrease colorectal cancer deaths through optimal use of cancer control interventions (i.e. screening, treatment, and risk factor modification).
For the first half of the webinar, presenters gave an overview of CISNET. They presented examples of current applications including a cost-effectiveness analysis for the Centers for Medicare and Medicaid (CMS) on the new technology of a DNA stool test for colorectal cancer screening and a new interactive Web site for modeling the impact of reducing risk factors, increasing screening, and chemotherapy dissemination on US mortality through 2020. In the second half of the call, callers were invited to ask questions about how these tools might be applied to issues of specific interest (e.g., cancer control planning in a geographic area, cost-effective screening strategies).
Tuesday, December 11, 2007 from 1:00 p.m. - 2:00 p.m. (EST)
Cancer Survivorship Research: A Dialogue with Advocates, Survivors, and Caregivers
Dr. Julia Rowland, Director, NCI Office of Cancer Survivorship (OCS) discussed how OCS conducts and supports research that both examines and addresses the long and short-term physical, psychological, social, and economic effects of cancer and its treatment among pediatric and adult survivors of cancer and their families.
For More Information: http://survivorship.cancer.gov
Thursday, November 8, 2007 from 1:00 p.m. - 2:00 p.m. (EST)
From Bench to Bedside: Research at NCI-Frederick, Maryland
Dr. Craig W. Reynolds, Associate Director, NCI-Frederick, and Director, Office of Scientific Operations discussed cancer research at NCI Frederick.
For More Information: www.ncifcrf.gov
Wednesday, October 31, 2007 from 1:00 p.m. - 2:00 p.m. (ET)
Cancer Risk Reduction: A Report From the President's Cancer Panel (PCP)
PCP member Dr. Margaret Kripke, senior program officer from the Robert Wood Johnson Foundation Dr. Dwayne Proctor, and president of Campaign for Tobacco-Free Kids, Mr. Matt Myers, highlighted issues of cancer risk reduction as they relate to physical activity, obesity, nutrition, tobacco use, and exposure to environmental tobacco smoke. A question and answer session followed.
For More Information about the President's Cancer Panel: http://pcp.cancer.gov
To View the full report: http://deainfo.nci.nih.gov/ADVISORY/pcp/pcp07rpt/pcp07rpt.pdf
To View the Executive Summary: http://deainfo.nci.nih.gov/ADVISORY/pcp/pcp07rpt/ExecSum.pdf
Wednesday, September 12, 2007 from 1:00 p.m. - 2:00 p.m. (ET)
Annual Update for the Advocacy Community from NCI Director
On Wednesday, September 12, 2007, Dr. John E. Niederhuber, Director of the National Cancer Institute, provided an update to the advocacy community on the current budget and promising research programs at NCI. Dr. Niederhuber also discussed the challenges that NCI and communities face in their attempts to overcome this devastating disease and stressed the importance of research into all types of cancer. Following Dr. Niederhuber’s presentation, advocate and Chair of NCI’s Director Consumer Liaison Group, Mr. Doug Ulman, provided advocates with information on how and why they should become involved in the work at NCI. Presentations were followed by a question and answer session which raised questions on a variety of issues from funding to future trends in cancer.
For more information about NCI Director Dr. John E. Niederhuber, please visit the Director’s Corner at http://www.cancer.gov/directorscorner.
Tuesday, June 5, 2007 from 1:00 p.m. - 2:00 p.m. (ET)
NCI Cancer Centers Program
On Tuesday, June 5, 2007, Dr. Linda Weiss, Chief of NCI’s Cancer Centers Branch discussed the structure and mission of NCI designated cancer centers. Dr. Weiss’ presentation was followed by two advocates’ perspectives of the cancer centers. Consumer Advocates in Research and Related Activities (CARRA) members, Ms. Francine Huckaby, Program Director at the MD Anderson Cancer Center in Houston, Texas; and Mr. Buddy Leo, founding member of the Patient Advocacy and Survivorship Committee at Thomas Jefferson University’s Kimmel Cancer Center in Philadelphia, Pennsylvania, provided a broad-based assessment and personal perspective of the centers. Presentations were followed by a question and answer session which raised questions on a variety of issues from whether the centers provide post cancer treatment care to whether they study the cause of cancer rather than just focusing on treatment.
For more information about NCI Cancer Centers Program, please visit http://cancercenters.cancer.gov.
Thursday, May 17, 2007 from 2:00 p.m. - 3:00 p.m. (ET)
NCI's Intramural Clinical Trials Program: A National Resource for Patients
On Thursday, May 17, 2007, Dr. Lee J. Helman, Scientific Director for Clinical Research of NCI’s Center for Cancer Research provided callers with information about clinical trials at NCI. Dr. Helman discussed the advantages of participating in a clinical trial as well as providing several resources to find out about eligibility for specific trials. Advocate Mr. Manny Hamelburg, Co-founder and former Executive Director of the Massachusetts Prostate Cancer Coalition, then went on to discuss his personal experience of participating in a clinical trial for prostate cancer in the early 1990's. After the presentations, there was a question and answer session which raised many questions on a variety of issues from prostate cancer treatment to whether funds are provided for family members to travel with the patient receiving treatment on a research protocol at NCI.
For more information about clinical trials at NCI’s Center for Cancer Research, please visit http://bethesdatrials.cancer.gov/ or call NCI’s Clinical Trials Referral Office at 1-888-NCI-1937.
For general information about NCI’s Center for Research, please visit http://ccr.nci.nih.gov.
Tuesday, April 24, 2007 from 1:00 p.m. - 2:00 p.m. (ET)
Resources for Understanding Cancer Risk
On Tuesday, April 24, 2007 Ms. Felicia Solomon, Public Health Advisor, Office of Education and Special Initiatives, started the teleconference by discussing NCI's educational Understanding Cancer Risk website. Ms. Solomon discussed how patients and the public can use the site and some of the research that went into its development. Dr. Mitchell Gail, Chief, Senior Investigator, Biostatistics Branch, Division of Cancer Epidemiology and Genetics, then went on to discuss additional information about understanding absolute risk for cancer (compared to relative risk) and the Breast Cancer Risk Assessment Tool. The call ended with a question and answer session with callers.
Wednesday, March 7, 2007 at 1:00 p.m. (ET)
How the Patient Navigator Program Helps Cancer Patients
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On Wednesday, March 7, 2007 the Program Director of the Patient Navigator Research Program (PNRP) at NCI's Center to Reduce Health Disparities, Dr. Roland Garcia, explained NCI's PNRP and how it can help cancer patients. Dr. Garcia also discussed the research hypothesis of the PNRP: patient navigation's ability to reduce or eliminate access barriers, improve timely diagnosis, improve the quality of treatment, and improve overall satisfaction of the healthcare system experience. In addition, Dr. Beth Calhoun, Co-principal Investigator for the Patient Navigator Research Program in Chicago, described the population she works with in Chicago, as well as the grant structure of the Patient Navigator Research Program, and how best to access community health networks. Advocate Ms. Phyllis Ferguson-Collum, Patient Navigator Social Worker for the American Cancer Society, discussed her experience working with the Patient Navigation Program in Chicago, explaining how she advocates for the patients and keeps them connected with their primary doctors in order to increase the number of patients who keep their follow-up appointments. Callers asked questions regarding to how the Patient Navigator Research Program was established and how to best serve populations in poor, underserved areas. |
For more information please visit http://crchd.cancer.gov/
Tuesday, February 20, 2007 at 1:00 p.m. (ET)
The NCI Bypass Budget & Strategic Plan: The Importance of Science Planning
The Director of NCI's Office of Science Planning and Assessment (OSPA), Ms. Cherie Nichols, discussed the importance of science planning to the patient advocate community. Ms. Nichols also explained NCI's science planning process and how advocates have been involved in the planning process, as well as implementation of plans. In addition, Ms. Nichols described NCI's Bypass Budget and Strategic Plan, and how they are related. Advocate Ms. Liz Thompson, Director of Research and Scientific Affairs of the Pancreatic Cancer Action Network (PanCAN), discussed how she worked with NCI to develop a map to identify and outline research priorities for PanCAN and how this implementation tool is still being used. Callers asked questions regarding funding and the budget process.
For more information please visit http://planning.cancer.gov/
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